Tag Archive | "ADAP"

Floridians Living With HIV/AIDS In Danger of Losing Health Services Ryan White & ADAP Faces Economic Crisi7

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By Dab Garner

I have just returned from the long exhausting trip and meeting. The following is my record of the events:

After Dab the AIDS Bear and I drove to Jacksonville, we rode the bus provided by AIDS Healthcare Foundation with 70 other activists, HIV/AIDS consumers and health care providers. Upon arriving in Tallahassee, we were pleased to see over 150 fellow activists, consumers and health care providers from the panhandle, Jacksonville and the Orlando areas. Unfortunately, this is where the good news ends.

I knew the situation was headed downhill as soon as I saw the same size of the meeting space provided. The space for the meeting with the Department of Health was not adequate for the number of people, so only about half were able to be in the room at any one time.

We were then informed the choices our state faces is either lowering Ryan White eligibility from 400 percent of the Federal Poverty Level (FPL) to 200 percent of the Federal Poverty Level (FPL), or capping ADAP and other services. According to the Department of Health (DOH) statistics, if we lower eligibility to 200 percent of FPL, 314 Floridians Living with HIV/AIDS will be dropped by AICP (AIDS Insurance Continuation Program) and 1562 Floridians living with HIV/AIDS will be dropped from ADAP. No statistics were presented on the number of consumers on HOPWA (Housing Opportunities for People with AIDS program) who would be affected.

After the very short presentation there were a few words from the DOH concerning the needs and impact of lowing Ryan White eligibility, but the majority of the meeting was by people – including myself – giving their testimonies about living with HIV/AIDS and how important Ryan White funding is for survival. We were also asked by the representatives from DOH to offer suggestions and recommendations which I found ironic, since basically either choice endangers the lives of Floridians living with HIV and AIDS.

Since I will be attending the remaining three meetings in Tampa and Miami over the course of the next 16 days, I am hoping those in charge of these meetings learned a few lessons. First, the meeting spaces need to be large enough for everyone

to attend the entire meeting. I also hope they will offer more information about the potential impact of the change in eligibility requirements, potential solutions and advise the community when the change will occur.

But most of all, I hope to see everyone impacted in our community, whether you are a health care or service provider for people with HIV, living with HIV yourself, know someone living with HIV or lost someone to AIDS. We must all work together to prevent Floridians with HIV losing life saving services, because without hope, there is no living with HIV. Not only with this affect us in Florida, the other states are watching to see what happens here next.

 

 

 

 

 

Daddy Dab Garner, Founder of Dab the AIDS?Bear Project, is a long  time survivor and HIV/AIDS?activist.
He can be reached at DaddyDab@ dabtheaidsbearproject.com

Florida GLBT Democratic Caucus urges action on ADAP crisis

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Michael Rajner

Fort Lauderdale – Florida’s AIDS Drugs Assistance Program (ADAP), which provides public assistance to more than 10,000 Floridians who cannot afford lifesusta in

ing AIDS drugs, will run out of funding in February. The program has a $14.5 million funding gap that could continue until the new funding year beings April 1. Additionally, there are 2,800 patients in Florida on a waiting list for AIDS medications – more than half the 5,100 patients on ADAP waiting lists around the country.

U.S. Sen. Bill Nelson has been working diligently to address the ADAP crisis in Florida. On Jan. 21, he sent a letter to Florida Gov. Rick Scott urging him to make this crisis a high priority and find state resources to keep Florida’s ADAP program fully operating over the next few months. Additionally, Sen. Nelson sent a letter to President Barack Obama requesting that federal ADAP funding be increased in his next budget proposal.

“Florida’s ADAP crisis is a very serious public health situation that needs to be addressed immediately. This is life and death for some individuals,” said Michael Rajner, Florida GLBT Democratic Caucus legislative director. “We commend Sen. Nelson for his tireless efforts to address the matter and hope Governor Scott will do all he can to alleviate the short-term funding gap with state resources. As a Floridian living with AIDS, I can attest to the fact that the life-saving medications patients receive from this program are vital to sustaining their health.”

THE YEAR THAT WAS 2010

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Photo: Tim Tebow Courtesy, palmbeachpost.com

2010 may become known as the year of the comeback. Just when you thought all hope was lost, President Barack Obama finally pushes through one of his campaign promises, and “Don’t Ask, Don’t Tell” is repealed in the final weeks of the year.

After seeing Florida take a step back in 2009 with a constitutional amendment making marriage between one man and one woman, the absurd law that said gays and lesbians could not adopt children in the state, went by the wayside, thanks to several rulings from Florida’s courts. Of course not all was good. We lost friend of the gays, our “Golden Girl” Rue McClanahan and gay shock jock Neil Rogers. We saw Ricky Martin come out, Tom Ford direct his first movie and Steven Slater quit his Jet Blue job in only the most fabulous way possible. Let’s reflect back on the year that was and hope the momentum on the gay agenda continues to swing upwards.

Now, enjoy some of the top stories and headlines from 2010, and here’s to an even better 2011.

January

*AIDS  Healthcare Foundation (AHF) filed a “sanitary nuisance” complaint with the State of Florida, against three pornography productions and distribution companies in Miami who filmed pornographic scenes without the use of condoms. AHF claims that workers in other industries who have an increased risk of catching infectious disease are protected with gloves and mask, and porn stars, they say, should have similar protection.

*An openly gay former Broward Sheriffs Officer, accused of sexually assaulting illegal immigrants, was freed on $250,000 bond while awaiting trial. Jonathon Bleiweiss, who patrolled the Oakland Park area, was released and will go live with his father in Oregon. Bleiweiss, a seven-year veteran of the BSO and one-time “Deputy of the Year,” faces 73 charges ranging from sexual battery, stalking and false imprisonment on at least nine different victims. He was jailed in August 2009.

Other Headlines:
• The ACLU calls for the dropping of the ban against gays and lesbians adopting children in state of Florida.
• Ihosvany Marquez of Miami is accused of using fake HIV clinics to defraud Medicare of more than $55 million dollars.
• The City of South Miami approved an ordinance providing for benefits for the domestic partners of city employees.

February

*Denver Broncos quarterback Tim Tebow , formerly from the University of Florida, starred in an anti-abortion commercial to be aired during the broadcast of the Super Bowl game for anti-gay group Focus on the Family. Focus on the Family is an evangelical Christian group based in Colorado that runs a ministry called Love Wins Out that attempts to convert homosexual teenagers into heterosexuals, often against their will. The group is also adamantly opposed to same-sex marriage rights.

*A program geared toward helping people maintain private insurance coverage if they are HIV-positive, has to put people on a waitlist due to increased demand. The AIDS Insurance Continuation Program (AICP) makes direct payments of up to $750 to employers or insurance companies for people diagnosed with AIDS or are HIV-positive with symptoms and who, because of the illness, are unable to maintain their private health insurance. The program had been helping 2,600 people with another 168 people waiting for help.

Other Headlines:
• Miami Beach gay bar The Palace fights to save their drag queen shows after a noise complaint was filed with the city by The Tides hotel.

• The Pride Center at Equality Park holds a ribbon cutting ceremony opening their new center on a twoacre, five-building property

March

*After a nearly 16-year fight, Congress passed historic health care reform legislation in the nation’s capitol. The 10-year, $938 billion bill, known as The Patient Protection and Affordable Care Act, was signed into law by President Barack Obama. Some of the provisions of the bill went into effect in October and the bill will be fully implemented by 2014. The non-partisan Congressional Budget Office said the bill would cut the federal budget deficits by an estimated $143 billion over a decade.

*National leaders made a week-long call for every church, mosque, synagogue, temple and home to join in prayer, education, advocacy and service for the healing of AIDS in the U.S. and the world. The purpose of the National Week of Prayer for the Healing of AIDS was to put the national spotlight on the AIDS epidemic in America while at the same time focusing on the role that our nation’s faith communities can and are playing in AIDS prevention, education, service and advocacy.

Other Headlines:
• Former Hollywood, Florida police officer Michael Verdugo files a lawsuit against the city for discrimination after being terminated.

• Lt. Dan Choi is arrested after chaining himself to the White House fence in protest of the military’s
“Don’t Ask, Don’t Tell” policy

• The Miami-Dade Gay & Lesbian Chamber of Commerce holds their first “Commit 2 Love” commitment ceremony and reception with 13 couples participating.

April

*President Obama called for the end of discrimination practices toward gay and lesbian couples’ visitation rights in hospitals when visitation is limited to immediate family members. The president also called and apologized to Janice Langbehn, who unsuccessfully sued Jackson Memorial Hospital after the 2007 sudden death of her partner Lisa Pond. Langbehn and Pond, along with their three children, were preparing to board a cruise ship when Pond suddenly suffered a fatal brain aneurysm. Langbehn contends that a hospital social worker would not let her visit Pond because Florida is “an anti-gay state.” Pond died the next day. A court determined that a hospital has the right to set its own visitation rules.

*Local activists Anthony Niedwiecki and Waymon Hudson move to Chicago. Neidwiecki, who also sat on the Oakland Park City Commission, was offered and accepted a high-level administrative and faculty law professor position at John Marshall Law School in Chicago. Hudson is a national LGBT rights advocate and writer. Niedwiecki and Hudson were co-founders of the LGBT lobby group Fight OUT Loud and led an activist campaign against former Fort Lauderdale Mayor Jim Naugle after he made a number of anti-gay statements. The couple also lobbied the Florida State Senate to overturn the state’s ban on gay adoption, after taking in a foster child who had been abandoned as “unadoptable” by the state because of the child’s HIV status. The couple wed in California in June 2008 before Proposition 8 was passed and remain legally married as one of 18,000 couples still wed after the anti-gay marriage proposition passed.

Other Headlines:
• Wilton Manors Main Street displays their “Main Street Initiative” for taking back control of Wilton Drive from the state, adding more parking and landscaping.

• The City Commission of Miami Beach and Wilton Drive approve a resolution for Washington to lift the ban on gay men donating blood.

• Florida Gov. Charlie Crist announced he’s leaving the Republican Party and running for U.S. Senator as an Independent.

May

*George Alan Rekers, a man whoprided himself on empathetically stating homosexuality was a sin and helping convert people of that “deviant lifestyle,” was caught traveling to Europe on a 10-day vacation with a prostitute from the website Rentboy.com, according to the Miami New Times. A week later, a second escort came forward and claimed that he remembered Rekers being a client of his more than a decade earlier. Rekers was founder of the Family Research Council and an officer with the National Association for Research and Therapy of Homosexuality

*Florida’s AIDS Drug Assistance Program (ADAP) ensures that that underserved and uninsured individuals living with HIV/AIDS have access to life-saving medication, but now some of the hardest hit individuals will be put on a wait list because the program simply doesn’t have the funding to continue supporting everyone. Florida has one of the highest HIV infection rates in the United States. Approximately 18,000 people qualified for ADAP in Florida because they met the requirements.

Other Headlines:
• Solicitor General Elena Kagan was chosen by President Obama to replace retiring Justice John Paul Stevens.

• Walgreens opens a new pharmacy geared toward the LGBT community in Wilton Manors.

• According to a poll commissioned by the Human Rights Campaign, more than two-thirds of Florida voters favor
gay men and lesbian women serving openly in the military.

June

*Americans’ support for the moral acceptability of gay and lesbian relations crossed the symbolic 50 percent threshold according to a Gallup poll. At the same time, the percentage calling these relations “morally wrong” dropped to 43 percent, the lowest in Gallup’s decade-long trend. Gallup’s annual “Values and Beliefs” survey documents a gradual increase in public acceptance in gay relations since 2006. The change is seen almost exclusively among men and particularly men younger than 50 and a greater movement toward acceptance among Independents, moderates and Democrats than among Republicans. Liberals were already widely accepting of gay relations in 2006 and have remained that way while conservatives’ acceptance continues to run low.

*Though they had the largest turnout for this year’s Stonewall Street Festival and Parade, Pride of Greater Fort Lauderdale reported a $30,000 loss for their 11th annual event. PGFL cited that lack of a complete sales infrastructure at the start of the festival, which was partially caused by an electrical storm early in the morning halting the erection of bar and ticket sales booths. By 11 a.m., the organization knew it was in deep trouble when it was reported that people started walking away from the event with cases of liquor. After the event, PGFL cancelled its plans for the annual Wicked Manors Halloween Street Party.

Other Headlines:

• Both the U.S. House of Representative and the Senate Armed Services Committee voted to end “Don’t Ask, Don’t Tell”.

• President Obama urged the swift passage of the Domestic Partner and Obligations Act, giving LGBT federal employees the same rights and privileges of their heterosexual counterparts.

• Florida Gov. and U.S. Senatorial candidate Charlie Crist changes his stance in favor of gays and lesbians adopting children in the state.

July

*U.S. District Judge Joseph Tauro ruled that the federal ban on same-sex marriage is unconstitutional because it interferes with a state’s right to define marriage. The ruling came in response to two separate challenges of the 1996 Defense of Marriage Act, known as DOMA. Congress initially enacted DOMA after Hawaii became the first state to legalize same-sex unions in that year. If the law is overturned, same-sex couples could argue they quality for federal tax benefits. It would also have wide-ranging implications in such areas as immigration.

*The White House Middle Class Task Force and Council on Women and Girls unveiled recommendations from the Equal Pay Enforcement Task Force aimed at ending pay inequality and discrimination. The recommendations are related to the 2009 passage of the Lilly Ledbetter Fair Pay Act , which helps women who face wage discrimination. The recommendations include ways to better inform employees about their rights and improve coordination amongst enforcement agencies. Advocates and officials also urged the Senate to pass the Paycheck Fairness Act, which will help ensure people who do equal work receive equal pay.

Other Headlines:

• The FDA approves a first-of-itskind HIV test that can detect HIV days earlier than current tests.

• An American Lung Association study indicated that the LGBT community is twice as likely to develop lung cancer, and that tobacco usage is highest among gay men.

• The National Gay and Lesbian Task Force honors Tony award-winning actor Alan Cummings with its National Leadership Award at its annual Miami Recognition Dinner.

• The U.S. Labor Department announced that it would order businesses to extend unpaid leave for gay workers to care for newborns or loved ones.

August

*LGBT organizers were shocked and upset with the Target Corporation for making contributions to Minnesota Forward, a political organization supporting Republican gubernatorial candidate Tom Emmer. Emmer was known for opposing gay rights, especially gay marriage. National days of protest were organized in neighborhood Target stores throughout the country. Target’s donation was $100,000 in cash and another $50,000 in goods and services. Best Buy, the giant electronics retailer, made a $100,000 donation to Minnesota Forward. The retailer was previously rated a 100 percent from the HRC Foundation’s Corporate Equality Index.

*U.S. District Judge Vaughn Walker struck down California’s Proposition 8 and reopened California to same-sex marriage. Walker, a conservative, was first appointed to the federal bench in 1987 by President Ronald Reagan. Walker’s ruling, though favorable toward same-sex couples, does not allow the marriages to resume immediately. The judge decided that he should suspend his ruling while proponents of the ban pursue their appeal. He ordered both sides to submit written arguments on the issue immediately.

Other Headlines:

• Sunserve opens a second location in the Pride Center at Equality Park

• Women’s softball players form their own softball league.

• Former Hollywood Police Officer Michael Verdugo holds a press conference explaining that he was fired from the Hollywood Police Department due to anti-gay discrimination.

• Former Manhunt employee A.J. Spellman accuses employer of transgender discrimination.

• Steven Slater, an openly gay JetBlue flight attendant, was arrested for flipping out as his flight landed in Philadelphia, cursing out the passengers, grabbing a beer and resigns his position while escaping the airline by the emergency chute. He pleads guilty to criminal mischief charges as part of a deal to avoid jail time.

September

*Florida’s 3rd Court of Appeals ruled that banning gays and lesbians from adopting children is unconstitutional. Though the ruling was expected to be challenged and sent to the state’s Supreme Court for their final decision, Florida’s Department of Children and Families and Florida Attorney General Bill McCollum said they would not appeal the decision. The original suit was filed by the ACLU on behalf of Martin Gill who, with his partner, wanted to adopt their two foster children. Late last year, Miami- Dade County Judge Cindy Lederman decided that Gill could adopt the children, which ultimately ended the 33-year ban on gay adoption in Florida.

*Former Republican National Committee chairman Ken Mehlman came out of the closet as being gay. In an interview in The Atlantic, Mehlman stated that he is, in fact, gay and that he plans to be an advocate for legalizing same-sex marriage. According to the New York Times, Mehlman’s “announcement makes him apparently the most prominent Republican official to come out.” This disclosure followed years of him avoiding and denying inquiries about his sexual orientation. During his RNC chairmanship, Mehlman supported social positions of the Republican Party, including opposition to same-sex marriage. Mehlman claimed that he could not have gone against party consensus, but acknowledged that, had he come out of the closet earlier, he could have impacted Republican efforts to pass state initiatives banning same-sex marriage.

Other Headlines:

• U.S. District Court in California declares DADT unconstitutional. Senate Majority Leader Harry Reid scheduled vote to repeal DADT as part of National Defense Authorization Act, but it fails to get the 60 votes required to break a filibuster.

• St. Petersburg Police get domestic partner benefits.

• Students Matty Daley and Bobby Canciello broke the Guinness Book of World Records for the “Longest Continuous Kiss.” The record-breaking kiss took place on The College of New Jersey campus located in Ewing, New Jersey.

October

*Gay teen suicides, all due to being bullied in school, became the major topic of national discussion and headlines and evoked protests, memorials and candlelight vigils throughout the country. Billy Lucas, 15, of Greensburg, Ind., saw no end to the constant stream of teasing and harassment for his openly bisexual orientation and hanged himself from the rafters of his family’s barn. A day before the suicide, Lucas had a chair pulled out from underneath him in the school cafeteria and his classmates had taunted him by saying he should just go hang himself. Seth Walsh, 13, of Fresno, Calif., hung himself from a tree in his family’s backyard after getting bullied by a group of local teenagers in a park. Walsh had been openly gay but not sexually active, according to his family. Tyler Clementi, 18, a freshman at Rutgers University in New Jersey, jumped off the George Washington Bridge into the Hudson River after his roommate secretly videotaped him engaging in sexual activity with another man. Asher Brown, 13, of Houston shot himself in the head in his stepfather’s closet. The middle-school student was constantly picked on by four students at his school and endured being called gay and had mock gay acts performed on him during physical education class. Raymond Chase, 19, a sophomore at Johnson & Wales University in Rhode Island committed suicide by hanging himself in his dorm room. Friends and family said that Chase seemed happy and they did not know he was suicidal.

*Pride of Greater Fort Lauderdale (PGFL) announced it would cease operations Dec. 31. The organization was able to pay off $20,000 of its total $40,000 debt and donated its remaining physical assets and it registered trademark “Wicked Manors” to the Pride Center at Equality Park. Later, the City of Wilton Manors announced they would handle all future events on Wilton Drive and hoped to keep a gay pride and Halloween festivals alive on The Drive. PGFL, which owned the electrical service on the corner of Wilton Drive and NE Sixth Avenue along with a custom-made electrical circuit box and cables for the stages, have donated that equipment to the city.

Other Headlines:

• The Gay, Lesbian and Straight Education Network (GLSEN), honored the Emmy Award-winning ABC comedy “Modern Family” at the Respect Awards. The series focuses on a diverse suburban family, including a gay couple with an adopted daughter.

• President Obama told a studio audience and television viewers of an MTV town hall meeting that he felt that being gay was not a choice but genetic.

• The Union Leader, New Hampshire’s largest newspaper, refuses to print marriage announcements for same-sex weddings.

November

*Florida’s struggling economy found its latest victims: uninsured HIV/AIDS patients. According to the Florida Department of Health’s Bureau for HIV/AIDS, a budget crisis is forcing the state to drop 350 uninsured HIV/AIDS patients from a federal drug subsidy program, and an additional 2,000 more patients may suffer the same fate. The need to drop patients from the AIDS Drug Assistance Program (ADAP) stems from Florida’s $16 million shortfall of its $100 million drug program budget. Another factor affecting the cuts is the economy, which has triggered an increase in the number of Florida patients being enrolled in the program due to loss of employment and health insurance. The Bureau estimates the current enrollment to be approximately 11,000 patients. The lack of funding has forced the agency to put patients on a waiting list.

*The U.S. Congress turns “pinker” with a distinctive taste of tea, and Florida becomes more “red” after the mid-term elections. Two term Rep. Ron Klein (D) from Florida lost to Tea Party-endorsed candidate Alan West, helping the GOP gain a 53-seat majority in the U.S. House. Re-elected were LGBT-supported Representatives Ted Deutch, Debby Wasserman Schultz, Alcee Hastings and Ileana Ros-Lehtinen. On a statewide level, Tea Party-backed Marco Rubio was elected to the U.S. Senate, defeating Florida Gov. Charlie Crist and Rep. Kendrick Meek. The Democrats barely held on to their majority in the Senate. Democrat Alex Sink barely lost her bid to become Florida’s Governor to Republican Rick Scott by less than 2 percent. Pam Bondi (R) was elected Florida Attorney General and has vowed to challenge the court decision permitting gay adoption. Broward County’s first openly gay mayor Ken Keechl (District 4) lost his reelection bid for the county commission.

Other Headlines:

• Pastor Jim Swilley, head of the Conyers, Georgia Church in the Now, announced to his congregation that he is gay. Swilley founded the church 25 years ago and is the divorced father of four.

• A Federal Appeals Court indefinitely extended its freeze on a judge’s order halting enforcement of the military’s “Don’t Ask, Don’t Tell” policy.

• U.S. Secretary of Defense Robert Gates wants the Senate to quickly move ahead with repealing “Don’t Ask, Don’t Tell” during the lame duck session.

•Wilton Manors Police investigate a series of attempted rapes and muggings.

• The Oakland Park City Commission votes in favor of a resolution supporting legislation prohibiting discrimination and bullying. • Pope Benedict XVI says that condoms can be justified for male prostitutes seeking to stop the spread of HIV.

December

*In the lame duck session prior to the new Congress, which begins in January, the U. S Senate voted to repeal “Don’t Ask, Don’t Tell,” a 17- year policy that banned gays and lesbians from serving openly in the military. The same legislation previously passed in the House of Representatives. With the help of eight Republicans, senators voted down the policy by a vote of 65-31. For Lt. Dan Choi, Capt. Jim Pietrangelo, Cadet Mara Boyd, Petty Officer Autumn Sandeen and the 13,389 other people who have lost their jobs in the United States Armed Services, it’s too late, but no longer will a man or woman be kicked out of the Army, Navy, Air Force or Marines for being openly gay or lesbian. President Obama signed the DADT repeal bill into law.

The new military policy will take several months to implement

*For the fourth year in a row, Broward County leads the state of Florida in the number of reported hate crimes, but officials say the numbers aren’t as dire as they seem for the second largest county in South Florida. Attorney General Bill McCollum released the 2009 Florida Hate Crimes Report, which indicates that reported hate crimes in Florida are at their lowest level since 1990. During the 2009 calendar year, 148 hate crimes were reported by law enforcement agencies, well below the annual average of 262 reported hate crime incidents since reporting began in 1990. Broward County had 22 reported hate crimes, while Miami- Dade County reported 17 hate crimes, Palm Beach County reported nine hate crimes, Orange County also had nine hate crimes, Pinellas County had three hate crimes and Osceola County had one reported hate crime

Other Headlines:

• Orange County banned sexual orientation and gender identity-based discrimination in employment, housing and public accommodations. • Scientists believe they have found a pill that can help healthy gay men stay HIV-negative.

• Former City of Hollywood Police Officer Michael Verdugo loses his court appeal in the Broward County Circuit Court.

• The Ladies Professional Golf Association (LPGA) changed their constitution to remove the requirement that players must be “female at birth” in order to join the tour, paving the way for transgender male-to-female golf players.


Community rallies for ADAP

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Nearly 50 people gathered Nov.

30 for a rally in downtown Ft. Lauderdale in support of the AIDS Drug Assistance Program (ADAP). Recent state and federal budget shortfalls have forced states like Florida to place hundreds of AIDS patients on a waiting list. The ADAP rally was organized by the AIDS Healthcare Foundation (AHF).

“We’re here to demand funding for the AIDS drug assistance Program and we’re specifically addressing it to Secretary of Health and Human Services, Kathleen Sebelius,” said Robert Butler, a physician’s assistant at AHF’s Northpoint Medical Center at Imperial Point Hospital. “We have had similar demonstrations in the past to try to increase funding, because there is a waiting list for drug assistance programs throughout the entire United States.”

Florida’s economic woes threaten uninsured HIV/AIDS patients

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Florida joins the growing list of states forced to cut drugs for HIV/AIDS patients due to budget issues.

Thousands in jeopardy of losing coverage

It appears Florida’s struggling economy has found its latest victims: uninsured HIV/AIDS patients. According to the Florida Department of Health’s Bureau for HIV/AIDS, a budget crisis is forcing the state to drop 350 uninsured HIV/AIDS patients from a federal drug subsidy program, and an additional 2,000 more patients may suffer the same fate.

The need to drop patients from the AIDS Drug Assistance Program (ADAP) stems from Florida’s $16 million shortfall of its $100 million drug program budget. Another factor affecting the cuts is the economy, which has triggered an increase in the number of Florida patients being enrolled in the program due to loss of employment and health insurance. The Bureau estimates the current enrollment to be approximately 11,000 patients. The lack of funding has forced the agency to put patients on a waiting list.

“We have not had this type of demand in 14 years,” said Tom Liberti, chief of the Bureau of HIV/AIDS. “We knew we had to have a waiting list quickly because we were over budget.”

Liberti, who estimates there are more than 2,400 patients on the waiting list, says the Bureau began putting patients on the list June 1. Of these patients, more than 1,000 live in South Florida and approximately 300 live in Central Florida. In a state that has the third largest HIV/AIDS epidemic in the country, having to drop patients from ADAP is not something the Bureau wanted to do, says Liberti. New York and California rank No. 1 and No. 2.

Flat funding from the Ryan White program, the economy and the increased number of patients came together to create what Liberti calls the “perfect storm,” which started in early 2009. While the Bureau, which has been around for more than 20 years, is trying to stabilize the program, it’s not there yet, he says. If the financial situation does not improve, there is a strong possibility that more patients could be dropped from the program.

“When people are diagnosed … they often need to be on medication right away,” said Lola Thomas, executive director of the AIDS Alliance of Northwest Georgia, one of the states that has a waiting list. “It’s devastating to the HIV community. It becomes difficult to keep up with the program.” As far as Florida is concerned, there are no guarantees that more patients won’t be cut, but the Bureau is trying to make it through March 31 of next year before any additional cuts are made. Liberti estimates that the state saves about $10,000 per every patient dropped, but that is not the ideal scenario.

“Everyone is trying very hard so that we don’t have to do that. I’m trying to stay optimistic,” Liberti said. That optimism is linked to several grant programs totaling millions of dollars, some of which the state has never been eligible for until now. The downside is the fact that grant awards aren’t usually handed out until at least April 1. Liberti says his office is going for as much money as possible.

In the meantime, dropping patients from ADAP and reducing eligibility were the immediate steps that had to be taken to ensure the program could stay afloat. Some of the patients being dropped may be able to obtain drugs for free or at a minimal cost directly through programs offered by drug manufacturers. The state is assisting patients in this process.

Broward Health to Host Community Meeting for HIV/AIDS Patients

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By Dmitry Rashnitsov

The Broward County Health Department is planning on hosting a community meeting regarding the recently implemented waiting list for the AIDS Drugs Assistance Program (ADAP).

The state Department of Health starting a waiting list for the program on June 1, and also will reduce the number of covered drugs in the program on Aug. 1, and will study other cuts, said Tom Liberti, chief of the department’s HIV/AIDS bureau.

“This is terrible news,” said Michael Rajner, a Fort Lauderdale AIDS activist and member of a department advisory panel. “We rely on the program for help with the drugs that keep us alive.

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Without it, I don’t know what people would do.”

The community forum is a place where people who are on the waiting list can get all of their questions answered from Tom Liberti, the HIV/AIDS Bureau Director for the Broward County Health Department.

The forum will take place on Thursday June 17 from 9-11 a.m. at the Broward County Health Department Main Auditorium, 780 SW 24th Street, Fort Lauderdale.

The purpose of the AIDS Drug Assistance Program is to ensure that underserved and uninsured individuals living with HIV/AIDS have access to life-saving medications. Those who live in Florida and have low-income at 400% or less of the Federal Poverty Level, are uninsured or do not have adequate prescription coverage and are not confined to a hospital, nursing home, hospice, or correctional facility qualify for the program.

Florida has never had a waiting list for these services before, but a lack of funding from the federal government and a record number of people applying for the ADAP has forced both Dade and Broward County to go to the waiting list.

Waitlist formed for Florida’s AIDS Drug assistance program

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$126 million national grant could help offset costs

By DMITRY RASHNITSOV

With one of the highest HIV infection rates in the United States, Florida’s department of public health has many programs in place to help those that cannot afford to pay for the costly medications to fight the disease. But due to budget cuts in the state government one of the programs is being severely reduced in its scope.

Florida’s AIDS Drug Assistance Program (ADAP) ensures that underserved and uninsured individuals living with HIV/AIDS have access to life-saving medications, but now some of the hardest hit individuals will be put on a waitlist because the program simply does not have the funding to continue to support everyone.

About 18,000 people qualified for ADAP in Florida because they met the requirements of being at 400% or less of the Federal Poverty Level; uninsured or without adequate prescription coverage; and not confined to a hospital, nursing home, hospice, or correctional facility. 9,000 of those people live in South Florida. Beginning June 1, anyone who applies for this program will be put on a waitlist until someone leaves the program.

“There are some cases where medical exemptions will be granted,” wrote Shairi R. Turner, Florida Health Department Deputy Secretary for Health, in an interoffice memo.

Some of those exempt from the waiting list are people who meet all other ADAP requirements who are pregnant, children, post-partum women, patients who are on chemotherapy and those that also have hepatitis B infections.

The waitlists were necessary because Florida’s ADAP saw a jump of 25 percent in the number of people applying for the program in the last two years, Turner wrote.

Also starting August 1, Florida ADAP will reduce the number of antiretroviral drugs it approves for patients.

Florida joins 10 other states who have waiting lists and about 12 other states that are considering them.

“This is terrible news,” said Michael Rajner, a Fort Lauderdale HIV/AIDS activist. “We rely on the program for help with the drugs that keep us alive. Without it, I don’t know what people would do.”

National HIV/AIDS are urging President Barack Obama to use emergency funds to restore the ADAP programs all over the country for the roughly 1,140 people who are currently on waitlists.

“One possible source for these funds is the roughly $20 billion in unspent and unallocated funding for HHS (Health and Human Services) from the American Recovery and Reinvestment Act. A small portion of these funds re-directed to ADAPs could immediately resolve this crisis,” wrote AIDS Health Care Foundation President Michael Weinstein in a letter to the President.

According to the AHF, there are approximately 1.2 million people in the US living with HIV/AIDS today. ADAPs serve over 160,000 people, accounting for nearly one third of the people on AIDS treatment in the U.S.

“Maintaining a sustainable drug assistance program is a critical need in our state,” Turner wrote. “Additional costcontainment measures are carefully being considered and evaluated to ensure the most effective and proactive response during these challenging times.”

Pounding the marble floors of Congress

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HIV/AIDS Patients living in fear that they will

soon lose access to their lifesaving HIV-medications

MICHAEL EMANUEL RAJNER, BSW (Photo)

I am in Washington, D.C. to attend an event celebrating the successful repeal of an age old ban prohibiting the use of federal funds for syringe-exchange programs and to also honor the amazing contributions of those involved in the effort.

The visit to Washington, D.C. is planned to be a joyful one, but as I prepare for the trip, I could not help but pack my schedule with visits with members of Congress and their staff as the sky continues to fall for some people living with HIV/AIDS.

While I will be there to celebrate and honor the work of great activists to repeal a ban based on ideology and not science, I will also be pounding the marble floors of Congress and serve as a voice to calling on members of Congress to provide $126 million in emergency funding for the AIDS Drug Assistance Program (ADAP).

With the passing of each day, more and more people living with HIV/AIDS in the United States are living with increasing fear that they will soon lose access to their lifesaving HIV-medications as our nation continues to struggle with its economy. Ten states (Hawaii, Idaho, Iowa, Kentucky, Montana, North Carolina, South Carolina, South Dakota, Utah and Wyoming) have capped enrollment of their ADAP and established waiting lists with more than 1,000 people waiting for access to their lifesaving medications.

As states continue to slash AIDS program budgets and leave some of their most economically vulnerable residents on the cutting room floor, the number of people waiting for access is quickly expected to soar beyond the 2004 record of 1,629 people on waiting lists. As this crisis continues to plague our nation, we’re reminded that America has AIDS and despite medications people are still dying while public health programs are operating at capacity and fail to be funded at the levels to sustain the actual need.

Pharmaceutical advertisements of an HIV+ person climbing a mountain only clouds the issue and doesn’t show the daily struggle of many lives in dire need to secure medications, yet they have no accessible means.

In the case of South Carolina, for three people with HIV/AIDS the ADAP wait list once again defined HIV/AIDS as a death sentence. Three residents of South Carolina have already perished as the state fails to respect every life and ignores the basic needs of their lowincome residents.

Back in November 20, 2006, I participated in a demonstration in Columbia, South Carolina to demand their state legislature adequately fund their state’s ADAP as hundreds of impoverished residents living with HIV/AIDS went without the most basic of lifesaving medications. At the time I served as the national secretary for the Campaign to End AIDS (C2EA) and drove up from Fort Lauderdale.

Caravans from neighboring states found refuge for a good night’s sleep on a church floor. In the morning, the army that gathered would take to the streets and marched to stand by their forgotten brothers and sisters.

Two weeks later, I remember speaking on stage in New Orleans at NAPWA’s once annual conference, ‘Staying Alive.’ When speaking to the audience of nearly 500 people living with HIV/AIDS from around the county, I knew then I’d found my voice as I called on a segment of the HIV/AIDS community to take action while on their daily struggle with this insidious virus.

Just before I was invited to the stage, Reverend Charles King called Karen Bates of South Carolina and told her to listen; he then put up his BlackBerry so she can hear her community – a family united by despair – respond to the call to action. As I spoke with anger and despair in my voice, I was clear to remind each person in that room of their duty to themselves and their peers.

There was a time when LGBT organizations were on the front line demanding our government respond to

the needs of dying gay men.

Defying social norms, segments of our community motivated by compassion and the need for every person to die with dignity engaged in direct actions involving civil disobedience. For many who engaged, they had a friend or loved one who was at home and probably forgotten by their family. Others may not have had a personal experience of someone struggling, they just knew they needed to get out there and fight for others.

Over the next few weeks I will be following the struggle that over 1,000 people living with HIV/AIDS are having while on a waiting list for their lifesaving medications. Stay tuned and ready to respond to a ‘call for action!’

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